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Project INCLUDE

Boys Town IRB number: 22-21-XP, UNC IRB number: 23-0378 (PI: Buss)

Four out of five people with Down syndrome have trouble hearing at some point in their life. Sometimes that hearing difficulty lasts a little while. Other times it can last a long time. Project INCLUDE will help us to learn more about how children and adults with Down syndrome hear. Many tests that doctors use to test hearing assume that everyone’s ears are the same. But that is not right. People with Down syndrome can have ears that are different from the average person. That means that doctors may not have all the information that they need to help people with Down syndrome hear the best they can. Project INCLUDE will help make better tests for hearing. People in this study will listen to sounds from a speaker or headphones. The tests feel like fun games, and we always make sure the sounds are at a comfortable level.

We are looking for people who:

-Have Down syndrome

-Are between 5 and 25 years old

-Don’t use a cochlear implant

Please contact us if you or someone in your family wants to join this study or get more information!

(919) 966-8649

hearinglab@med.unc.edu